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Showing posts from October, 2011

This is what I live with... lets keep praying

(Synonyms: neuromyelitis optica, NMO, Devic's syndrome) About Devic's Disease Devic's disease is an inflammatory disease of the central nervous system in which there are episodes of inflammation and damage to the myelin (fatty, protective covering of nerves) that almost exclusively affect the optic (eye) nerves and spinal cord. It usually causes temporary blindness, occasionally permanent, in one or both eyes. It can also lead to varying degrees of weakness or paralysis in the legs or arms, loss of sensation, and/or bladder and bowel dysfunction from spinal cord damage. Types It appears as though there are two major types of Devic's disease. In the first type, optic neuritis, (inflammation of the optic nerve), and myelitis, (inflammation of the spinal cord), episodes tend to come very close together often within days or weeks, and there is no recurrence after the initial flurry of symptoms. In the second form, repeated episodes of optic neuritis and myelitis...

ITS TIME... GET UP!!!!!!!

TODAY IS ONE OF THOSE DAYS, I'M FEELING FRUSTRATED & OVERWHELMED... I'M HAPPY TO BE HOME SEEING THAT I HAVE BEEN AWAY AND IN THE HOSPITAL FOR OVER A YEAR AND FROM WHAT I HEAR FROM MY FAMILY THEY DIDN'T KNOW IF I WAS GOING TO MAKE IT. I'M TIRED OF BEING CONFINED TO A WHEELCHAIR & HAVING LIMITED ACCESS TO GETTING OUT OF THE HOUSE I'M READY TO GET UP AND GO. SOMETIMES I FEEL GUILTY FOR FEELING LIKE THIS BECAUSE I KNOW I AM BLESSED TO BE ALIVE BUT I'M STILL HUMAN AND I'M STILL YOUNG & VIBRANT, I WANT TO GET UP, GET OUT AND GO! I WANT TO DO THINGS ON MY OWN, SIMPLE THINGS LIKE SHOPPING, GOING TO GET MY NAILS DONE, TAKING MY DOG FOR A WALK IN THE PARK,DOING THE GIRLFRIEND TRIPS, HIT THE OPEN MIC SPOTS & ETC... I KNOW GOD HAS TRULY BLESSED ME AND WHEN I HAVE THESE MOMENTS I PRAY BUT TODAY I JUST CAN'T SEEM TO SHAKE IT, I KNOW THIS MOMENT WILL PASS BUT IT DOESN'T CHANGE THE FACT THAT I'M TIRED OF BEING IN THIS WHEELCHAIR ITS TRULY TIME ...